Shropshire man Noel Conway loses High Court challenge on assisted dying
A Shropshire man who is terminally ill with motor neurone disease has lost his High Court challenge against the law on assisted dying.
Noel Conway, who lives near Shrewsbury, was diagnosed with motor neurone disease in 2014 and is not expected to live beyond 12 months.
The 67-year-old retired lecturer, asked for the law on assisting dying to be changed to allow him a “peaceful and dignified” death.
Mr Conway has vowed to appeal against the decision made by Lord Justice Sales, Mrs Justice Whipple and Mr Justice Garnham.
They dismissed his application for a declaration that the Suicide Act 1961 is incompatible with Article 8 of the European Convention on Human Rights, which relates to respect for private and family life.
Noel said: “I am deeply disappointed by today’s judgment and fully intend to appeal it. The experiences of those who are terminally ill need to be heard.
“This decision denies me a real say over how and when I will die. I am told the only option I currently have is to effectively suffocate to death by choosing to remove my ventilator, which I am now dependent on to breathe for up to 22 hours a day. There is no way of knowing how long it would take me to die if I did this, or whether my suffering could be fully relieved. To me, this is not choice – this is cruelty.
“As I approach the end of my life, I face unbearable suffering and the possibility of a traumatic, drawn out death. Travelling to Switzerland is no longer a viable option and I cannot put my family or doctors at risk of prosecution by asking for their help here at home. Knowing I had the option of a safe, peaceful assisted death at a time of my choosing would allow me to face my final months without the fear and anxiety that currently plagues me and my loved ones. It would allow me to live the rest of my life on my own terms, knowing I was in control rather than at the mercy of a cruel illness.
“Throughout this case I have been overwhelmed by the outpouring of support the public has shown me. I know that this fight is important not just to me, but thousands of others. I am undeterred by today’s decision and will appeal it with the support of my legal team and Dignity in Dying.”
Sarah Wootton, Chief Executive of Dignity in Dying, said:
“Whilst we are disappointed with the judgment, it does confirm that the courts have the authority to declare the current law inconsistent with our human rights. Noel does not accept the death that the current law forces him to have, and neither do we, which is why Dignity in Dying will support Noel every step of the way to take this case on to the appeal courts.
“How can it be more ethical or safe for Noel to have his ventilation withdrawn under the current law, with no formal safeguards, than for him to request life-ending medication within the multiple safeguards proposed through his case? This is paradoxical.
“It is clear the current law does not work, when every eight days someone from this country travels to Dignitas; every year 300 dying people end their own lives at home in England and Wales; and thousands more experience unimaginable suffering right to the bitter end. Terminally ill people deserve to be listened to. They are, after all, the true experts on how they want to die.
“The law being proposed in Noel’s case is not a step into the unknown – it has been proven to work safely and effectively in Oregon, USA, for 20 years and now almost 57 million Americans live in states where they could request assisted dying if they were terminally ill. Similar laws are due to be debated in the Australian states of Victoria and New South Wales before the end of the year. Dying people in this country are being let down while the rest of the world moves on.
“Dignity in Dying remains committed to fighting for positive change and will continue wholeheartedly supporting Noel as he assesses his options for appeal.”
Noel’s solicitor Yogi Amin, partner and head of public law and human rights at Irwin Mitchell, added:
“Today’s judgment is obviously disappointing and on behalf of Noel we will now seek permission to take the case to the Appeal courts.
“Noel would like the choice to be able to die with dignity. He has proposed a new legal framework with safeguards in place of the current blanket ban on assisted dying. The world has changed phenomenally in the past few decades with many medical advances but the law on assisted dying for those who are terminally ill hasn’t changed for more than 50 years.”
